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Old 08-09-2007, 09:18 PM   #10
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Marie,

My heart goes out to you. I feel the pain in each and every word you write. You are a wonderful caregiver and Ed is certainly lucky to have you by his side. As for the family -- tell them when you don't want them there and they should respect your wishes.

Please apply for social security disability for Ed if you have not already done so. You can actually do it online and with having Stage IV cancer you will receive a quick, positive answer.

Take each day one at a time. Enjoy each other. Ed will have bad days as he's been through so much in such a short period of time. And now he will be starting chemo. I know in my heart that this chemo regime will be just the ticket Ed needs to become NED.

You and Ed are in my prayers every day. Don't loose your fighting spirit -- you need to hold on and hold on tight! Remember Miracles do happen.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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