HER2 Support Group Forums - View Single Post - Husband Had Some Major Set-backs From Pelvis Radiation

MichelleH · 08-09-2007, 07:26 PM

Oh my gosh Marie, my heart has just sunk reading your post, I feel your pain, frustration & agony. By all means, as Joe has suggested, SS disability is what you two need to do and do quickly. As far as the drugs, the drug companies have some good programs that can possibly give you these drugs for free. This is how I get my Tykerb/Xeloda because I have insurance with no prescription coverage & can not afford to buy these drugs. Of course, there is some red tape, and a few hoops that you must jump through along the way but well worth it. It just pains me to hear you & Ed having to deal with the fear of no insurance among all the rest of your concerns with Ed and this crappy illness. Oh crap, now I am bawling. Keep the faith girl. I truly believe that Ed will start feeling better soon after starting Tykerb & Xeloda, as I have. All of us here love and support you and Ed. You are truly a warm, loving and caring person. Ed is truly blessed to have you as his caregiver.
You and Ed are always in my prayers.

Bless you both.

Love & big warm hugs,

Michelle

08-09-2007, 07:26 PM	#6
MichelleH Senior Member Join Date: May 2007 Location: Northern Michigan Posts: 68	Marie Oh my gosh Marie, my heart has just sunk reading your post, I feel your pain, frustration & agony. By all means, as Joe has suggested, SS disability is what you two need to do and do quickly. As far as the drugs, the drug companies have some good programs that can possibly give you these drugs for free. This is how I get my Tykerb/Xeloda because I have insurance with no prescription coverage & can not afford to buy these drugs. Of course, there is some red tape, and a few hoops that you must jump through along the way but well worth it. It just pains me to hear you & Ed having to deal with the fear of no insurance among all the rest of your concerns with Ed and this crappy illness. Oh crap, now I am bawling. Keep the faith girl. I truly believe that Ed will start feeling better soon after starting Tykerb & Xeloda, as I have. All of us here love and support you and Ed. You are truly a warm, loving and caring person. Ed is truly blessed to have you as his caregiver. You and Ed are always in my prayers. Bless you both. Love & big warm hugs, Michelle __________________ Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3, Mastectomy & 11 nodes removed, all negative. 4 rounds A/C + 12 wky Taxol 25 rads Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs January 2007- 3 tri wkly rounds of Taxol/Herceptin Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing. March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing. June 5- started Tykerb/Xeloda Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing! Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27 Dire need of a lot of prayers and a miracle. Stay at home mom, 5 yr old girl & 8 yr old boy. Wife of loving husband