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Old 08-03-2007, 10:29 AM   #9
Lala
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Join Date: Feb 2006
Location: South Florida
Posts: 131
I have to add I am a strong advocate that all Her2+ upon diagnosis get a base line PET Scan. In my opinion, I think it is needed to help with the staging process.

When I was diagnosed I was thought to be only Stage 1 based upon my Tumor size being under 2 cm. Although I had no symptoms of pain I felt I needed to be tested head to toe before I had a lumpectomy. I requested and fought for a PET Scan.

The PET Scan revealed that I had Bone mets. Later tests showed Liver mets. I learned that Her2 is aggressive and being properly diagnosed is the key to proper treatment. Thankfully that PET Scan was the key to a proper diagnosis for me. I was then able to get the proper treatment quickly.

It is extremely important that if you are scheduled for a PET Scan, Please ask your imaging center for the Special PET Scan Diet.
This Diet needs to be done prior to your scan appointment. This is a diet that removes all glucose the from your body, enabling the PET Scan to properly work. The night before and day of your test you have a list of foods you must avoid. It is so crucial to do this diet as it enables the proper results. Sadly some people do not know this and the PET scan results can be affected by your diet. My cancer center sends out instructions on how to prepare for all diagnostic tests.
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Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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