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Old 07-24-2007, 04:30 PM   #45
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Looking for reassurance.....

Everyone, thanks for your thoughts on second opinion re: the slides. I was on my high horse and wanting to do that too. Then I thought about it and realized that other opinions are not going to show LESS cancer. And even if they discovered MORE, that would only seem to suggest that chemo is indicated even more too. So despite the shoddiness involved, the outcome is the same.
I dont want to do chemo but would always feel regret if cancer returned. I thrive on regret!! And , as much as I want to, I really can't entirely believe the doc who says I am disease free and need no further treatment....I will probably therefore begin TCH this week. Even though we are moving at the same time....because there are scheduling conflicts in the upcoming weeks as well. There is never a good or perfect start date!!!
SO, my next question is, what was the first day like for you?? Are symptoms particularly troublesome the first time? Will I be okay in a few days to go off on a lark that I have planned for and looked forward to for a very long time? And is it true hair loss is usually around 2 weeks? I read that it is good to get a short haircut ahead of time and I have done that.
No one (but YOU guys!) told me to get a dental cleaning ahead of time but I did that today. So I guess I have been preparing for this decision. Was just not ready to surrender.

ETA: another reason for not getting more opinions on the slides is that City of Hope DID confirm the intial cancer findings when I went there for a second opinion....
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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