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Old 07-21-2007, 05:43 PM   #30
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Whoa Girl!! You sound like you are on the same roller coaster ride that I was on!! I was right there 6 months ago where you are right now....Like: bad news (malignancy), good news (small invasion), bad news (what they recommend chemo???), ....know what I mean? The bottom line of the good news that I kept telling myself is that if it were not for the fact that our diagnosis showed such a small invasion, it leaves me with more choice in the matter. Another thing is either option is a win-win situation (to do or not do chemo).
Regarding the Oncotype Dx, mine was mostly DCIS with a 6mm invasion. Mine was considered a good candidate for the Oncotype testing according to my oncolgist.
I know it would not have been a bad idea to forgo chemo. I know that doing chemo cuts my relatively low recurrance score down a bit more. So I decided to do the TCH. I stopped my Arimidex, did my 6 txs of TCH, and now I resumed my Arimedex and am doing herceptin alone.
I had my surgery mid November, 2006, and I began my TCH end of January. In between that time I was on that same roller coaster ride that you are on. I flew from Hawaii back up to CA for a consultation with Dr. Pegram at UCLA regarding the recommendation for chemo since he was the expert with the HER2. My meeting with Dr. Pegram is what gave me helped me make my decision.
I feel good about my decision. I did the chemo. I feel great.
Maryanne (harrie)
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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