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Dear Grace
I burned very badly too but recovered well (like you did in the beginning) but have no lasting effects. My radiated breast is slightly darker and the breast/skin itself is firmer. That breast is actually "perkier" than my unaffected breast (go figure).
I see my radiation oncologist every 6 months but I think when I see him in October, he will switch me to once a year. (My mother had him too and she still sees him once a year- he does this with the lumpectomy patients so that we get in an additional clinical breast exam as there are 2 intact breasts there where a new problem could occur). Also, I think he just likes watching out for my mom and me very diligently and has a special feeling (this isn't the right word) for us. He had me use the Binefide cream for over 6 months. My mom told me to use pure 100% aloe vera gel for a year. Since hers turned out so good, I did and I did great (could just be the genes - the good and bad of it).
See your radiation oncologist about this as this is his area of expertise and he will have the right suggestions and exercises to help remedy this problem.
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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