HER2 Support Group Forums - View Single Post - Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?

TheresaM · 07-14-2007, 07:27 PM

thanks for your sugestions. unfortunately i'm in hawaii and can no longer fly for a clinical trial, using oxygen 24/7, already nearly cranked to the max.

I've done avastin and herceptin, neither seems to have done anything for me, in various combos. only drug that ever knocked my mets back was tykerb/xeloda, but as i said that only lasted 7 weeks and then nearly killed me.

i dont believe in miracles, but maybe it doesnt matter that i dont believe. if the faslodex/exemestane actually got me off oxy, i'd be on the next plane to Portland where there is an excellent onc of my friend's who specializes in mets breast cancer and also does research.

thanks again for your help, and thanks to all the other responders who sent me good wishes,
Theresa

07-14-2007, 07:27 PM	#12
TheresaM Member Join Date: Feb 2007 Posts: 23	Lani thanks for your sugestions. unfortunately i'm in hawaii and can no longer fly for a clinical trial, using oxygen 24/7, already nearly cranked to the max. I've done avastin and herceptin, neither seems to have done anything for me, in various combos. only drug that ever knocked my mets back was tykerb/xeloda, but as i said that only lasted 7 weeks and then nearly killed me. i dont believe in miracles, but maybe it doesnt matter that i dont believe. if the faslodex/exemestane actually got me off oxy, i'd be on the next plane to Portland where there is an excellent onc of my friend's who specializes in mets breast cancer and also does research. thanks again for your help, and thanks to all the other responders who sent me good wishes, Theresa