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dear Flori, I can really sympathize with you. I just finished WBR, which has gone well. I have fatigue and am bald, but have seemed to avoid some of the other nasties.
I also have 2 other things going on. A met in my lower spine which is being radiated. I will be finished with that next Wed.
I also have a callapsed left lung. They tried to open the lung, but it was too scarred. So they put a pleural catheter in which my husband drains every three days. We get out about 450ml. It feels like an elephant is sitting on my chest when we finish. If we did not do this the fluid would build up and expand to the other lung and I would surely die without intervention. I think this is what happened to Sandy. They did not get her started soon enough and both her lungs were affected.
I just can't imagine other people going through this. I never would have thought my life would end up like this.
My husband talked to my doc about my prognosis and she said my tumors are slow growing and that it is hard for them to give me a prognosos. So I'll continue to do what I have to to stay alive, but it is hard.
I am currently taking meds for depression which help. You might want to see someone to help you.
I know this really sucks for you. All I know is for now I will continue treatment, until it isn't worth it. I will pray for you to work your way through this. It is so hard.
Blessings to you
Lu Ann
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