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Old 06-30-2007, 01:56 PM   #5
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Exclamation Dear Chelee

Hard not to take this PERSONALLY. I so understand. Of course, you are entitled to your records. And better, faster treatment in general! Sounds like your surgeon's office is mismanaged and overwhelmed. My internist, whom I love, has the same issue. I have mentioned to him that 15 urgent messages to him, from 8:30 AM went unanswered more than one day (during my husband's Shingles and complications crisis). He heard me. The situation still persists. I can't deal w/such an office.

The only way I got through was when I called my daughter and said, I'm not thinking clearly (been 3 X to emerg rm in 1 wk with Paul's issues). What can I do? Do they have a "prompt" that says IF YOU ARE A DOCTOR OR A HOSPITAL...? Yes. Push it! But -- I'm NOT a doctor or a hospital. You've called 10 X and no one has answered your call for help! Push the button. So I got up my courage and did! And they didn't even question me. They put me straight through. To a live person, not a machine.

You can't work w/an office that is so messed up they don't give you your much asked for results, you have to go in to procure your results in person. Medical records is virtually non-functioning in that doc's office. His nurse is utterly inefficient or maybe too backed up. Not your concern. You need responsive docs and efficiently run offices. Anything less is unacceptable. So, Chelee, don't take it personally. I honestly don't think they are keeping your results from you. They just don't know which end is up. Pathetic excuse for a doctor's office. Can you switch surgeons from here on? Get great references and move forward. You deserve the best of care!

Cancer patients are generally treated like royalty I have found in my 12 yrs of experience. That's what you should have, not further agitation. We have enough to contend with. Be good to yourself, Chelee. We all love you. Sending healing energy your way, honey... ANDI BIG hugs!
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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