HER2 Support Group Forums - View Single Post - Surgeons office keeping my results from me..

Chelee · 06-29-2007, 03:36 PM

I've had a on-going problems with a LARGE seroma in my rt side of chest. HAD to pressure my surgeon recently to get him to have it drained. I had the *orignally* US of seroma on 6-6-07. I had requested a *copy* of that report from day one. (Told DAILY its in the mail.) Not.

Ended up having it drained a wk later. Then I started requesting BOTH reports...the orignally US...& the results of the stereotactic guided biospy/draining. (Again, told daily there in the mail.) So I told them yesterday I am *coming* down there & will pick them up in person. I *finally* got them both. I'm NOT happy. Both reports has a BIRADS 2 rating which I know is most likely benign. I'm not worried about that. But recommenations on BOTH reports from TWO different places said to FOLLOW-UP with US's of BOTH breast in 3 months. (Remember, I am a stage III'er with positive nodes & NO radiation.)

Shouldn't they have TOLD me I had a BIRADS 2 rating on BOTH reports...& BOTH recommended me to have a follow-up ultrasound in 3 months. Its already been 24 days & they did NOT call me & set-up an appt to discuss these findings. Nor did they even mention what was found on the reports when I called. I spoke with my surgeons main nurse almost daily over this 3 wk period. Isn't there some kind of law that they HAVE to *inform* you of your test results & follow-up?

I *wouldn't* even know about any of this had I not marched down there in PERSON to pick up these reports. Let alone I had been a bit stressed *wondering* what was found in the fluid they removed? I wanted the path report on it to make sure NO malignant cells were found. What YEAR were they going to tell me any of this if at all? Do they have a RIGHT to keep this from me? They had the results back in two days...the paper is dated. I feel like they TRIED to keep this from me. Seems my surgeon should of had me come in to see him?

Chelee

06-29-2007, 03:36 PM	#1
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Surgeons office keeping my results from me.. I've had a on-going problems with a LARGE seroma in my rt side of chest. HAD to pressure my surgeon recently to get him to have it drained. I had the orignally US of seroma on 6-6-07. I had requested a copy of that report from day one. (Told DAILY its in the mail.) Not. Ended up having it drained a wk later. Then I started requesting BOTH reports...the orignally US...& the results of the stereotactic guided biospy/draining. (Again, told daily there in the mail.) So I told them yesterday I am coming down there & will pick them up in person. I finally got them both. I'm NOT happy. Both reports has a BIRADS 2 rating which I know is most likely benign. I'm not worried about that. But recommenations on BOTH reports from TWO different places said to FOLLOW-UP with US's of BOTH breast in 3 months. (Remember, I am a stage III'er with positive nodes & NO radiation.) Shouldn't they have TOLD me I had a BIRADS 2 rating on BOTH reports...& BOTH recommended me to have a follow-up ultrasound in 3 months. Its already been 24 days & they did NOT call me & set-up an appt to discuss these findings. Nor did they even mention what was found on the reports when I called. I spoke with my surgeons main nurse almost daily over this 3 wk period. Isn't there some kind of law that they HAVE to inform you of your test results & follow-up? I wouldn't even know about any of this had I not marched down there in PERSON to pick up these reports. Let alone I had been a bit stressed wondering what was found in the fluid they removed? I wanted the path report on it to make sure NO malignant cells were found. What YEAR were they going to tell me any of this if at all? Do they have a RIGHT to keep this from me? They had the results back in two days...the paper is dated. I feel like they TRIED to keep this from me. Seems my surgeon should of had me come in to see him? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.