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Old 06-29-2007, 04:15 AM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
New Herceptin Dosing for me

I have realized after week 3, I do need to get a full size calender for my purse to keep up with appointments at the onc. center...I am on Taxol 3weeks on, 1 off x12, Avastin every other week, and Herceptin every 3 weeks. They would not give me my Herceptin yesterday when I had the Taxol/Avastin, and I return next week on my week off for the Herceptin. They are giving Herceptin every other week now in Chigago for many patients and this is different from the weekly and every 3 weeks...they find it is more synergistic with thte Avastin which is every other week...anyone else have this dosing for the Herceptin.
So far everything is going well, the nodes are now 1/3 their size after treatment 3, which is excellent. My hair was falling out like a bad rainshower...so it was buzzed! I am learning to like scarves...never was a scarf person before. I have learned to make so comfy and cute head wraps out of tshirts...very soft and reasonable, and I can color coordinate any outfit!
I just feel like I lose a day each week due to the Benedryl/Decadron/Pepcid premeds...sleep all day, up all night.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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