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Old 06-28-2007, 09:32 AM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Oh Marie, I know this is SO what you did not want to hear! My heart just sank when I read your post. If you feel like screaming, you should go ahead and do that (although you may want to do it out of earshot of your hubby since that might not help HIM).

Then try to calm yourself. BREATHE. BREATHE again. And again. The MRI report gives you more information. It is not the end, it is only information, which will help guide you and your team in deciding what the next step is.
You know that brain mets are treatable - as many on this board have been LIVING with this for years. Christine. StephN. Esther. Others (sorry I can't remember names!).
You didn't mention how large or extensive the brain mets is, perhaps you don't have this information yet.

Check the info on the Her2 home page, the link is below.

http://her2support.org/index.php?option=com_content&task=view&id=44&Itemi d=67

Again, I am so sorry you have this additional wrinkle to worry about. But you now have much more/better information for DFCI than you would have last week.

Please don't give up hope, keep believing.
chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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