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Meet the Americans..
My intial post disappeared byt here is a quick update on my trips to the States, Steph and I had a great lunch and I got to visit their (+Emile) impressive wine shop..complete with French hubby!! Just like home away from home.. (!) Thank you again Steff and I will see you again next time hopefully with Suzanne too.
I will not be visiting any other cities next time as I started to find the whole process physically and mentally demanding. However I am staying around Seattle/ Vancouver. I am staying at a retreat 1.5h from Seattle and I have also met quite a few people to go out with, visit, hiking when I come up, which is great.
In brief, I can say one thing, The States was never really on my list of countries to visit but and I love it; you have a trully beautiful country and friendly people.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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