Oh, Andi - what an incredible ordeal - and one that has been going on for weeks. I can feel your 100mph stress level just by reading your post (maybe for a few days you should slow down and include the vowels!LOL) It seems you have not just your body but your mind in turbocharge mode - thinking, praying, monitoring, working on relaxation for you and Paul both. We are all praying for both of you - if you have to relax your mind a bit for a while you can release some of your anxiety over Paul to the angels being summoned by all our prayers.
I know about going to Yosemite in your head - I am lucky enough to go there in body whenever I need to, but I have a special place there in the high country that I go in my head daily. Yesterday I physically wnt thr, I love my first visit each year when I can see the new life, see how things have changed yet remained the same. This is my place of strength - I feel like I can just plug into the power of life there. It is in Lyell Canyon, near Tuolomne Meadows. There is a place where there is a series of bridges over the Lyell fork and the power of the water rushing through is awesome. My favorite part is actually in some boulders in the river where pine trees are growing out of rock. I have a special one I call my "chi tree" and I go there to connect with the life force that can make trees grow in the tiniest crack in a rock. It is my most favorite place in the world. Hold thoughts of that sort of power and life, and imagine the torrents of water rushing through rivers and over the edges of granite cliffs washing all the stress from your life and filling you with new clean energy and power.
I am sending you and Paul all the healing and calming energy I can find.
BTW, QOL is sometimes a good Zin at Yosemite, check out my updated avatar!
Much much love
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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