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Chelee · 06-22-2007, 01:27 PM

Chrisy, That is really something that they are using the her2 serum test in your trial. Ha! I really thought it was being used on a regular basis now at all your major cancer centers...guess not though.
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Gerri, I get all my six month scans but I have to push for them. They rather me not have them to save money. I did ask about the tumor marker at City of Hope and it was mentioned they don't do that either. As we know they really aren't reliable. But I have the place I'm at do them anyway. Mine always seems to be 15. Is it the City of Hope doing a clinical trial on tumor markers...and if so are you in this one?
I sent you the name of the onc I am seeing...I do believe you have the same one. She is awesome...I really like her.
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Kate, I am stage IIIA and my onc won't do the her2 serum test. I am not sure she even knows what it is? I am surprised that every time I bring up this test to *any* onc they look like they have no clue what I am talking about? I will have to copy
some literature on this to have on hand for them next time I bring it up.

Chelee

06-22-2007, 01:27 PM	#6
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Chrisy, That is really something that they are using the her2 serum test in your trial. Ha! I really thought it was being used on a regular basis now at all your major cancer centers...guess not though. ----------------------------------------------------------------------------- Gerri, I get all my six month scans but I have to push for them. They rather me not have them to save money. I did ask about the tumor marker at City of Hope and it was mentioned they don't do that either. As we know they really aren't reliable. But I have the place I'm at do them anyway. Mine always seems to be 15. Is it the City of Hope doing a clinical trial on tumor markers...and if so are you in this one? I sent you the name of the onc I am seeing...I do believe you have the same one. She is awesome...I really like her. ----------------------------------------------------------------------------- Kate, I am stage IIIA and my onc won't do the her2 serum test. I am not sure she even knows what it is? I am surprised that every time I bring up this test to any onc they look like they have no clue what I am talking about? I will have to copy some literature on this to have on hand for them next time I bring it up. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.