HER2 Support Group Forums - View Single Post

Chelee · 06-21-2007, 08:09 PM

Karen, Yes, I would like to hear what you learn from your Endocrinologist visit. Thanks, I appreciate that as it will be a while before I get into one. Will look forward to your post.

----------------------------------------------------------------------------
Debra & Tricia, The more I read about this and hear from other women it seems to be no set answer. So many women that have started on them when just osteopenic...but yet other onc's say they should NOT be started yet. I can find lots of info to support both ways when I google this topic. So I can't wait to see the Endocrinologist and get his opinion. If he says no to me...that will be THREE no's. I have other bone issue's so I really thought they would want me on something now verse's later. Or at least do what Becky's GYN & Onc both agreed on...which was to give her Zometa twice a year at least. I think that is a great way to handle this.
-----------------------------------------------------------------------------
Becky, That is exactly what I thought. But since I don't have a good relationship with my current onc...I went up to the City of Hope & got an onc opinion there on my last DEXA scan & its recommendations that I start on a bone strengthener. The onc at City of Hope said its not needed now but to see an Endocrinologist. There is SO MUCH information to digest on this subject. Can't wait to see what an Endo says.

Thanks to all for your input.

Chelee

06-21-2007, 08:09 PM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Karen, Yes, I would like to hear what you learn from your Endocrinologist visit. Thanks, I appreciate that as it will be a while before I get into one. Will look forward to your post. ---------------------------------------------------------------------------- Debra & Tricia, The more I read about this and hear from other women it seems to be no set answer. So many women that have started on them when just osteopenic...but yet other onc's say they should NOT be started yet. I can find lots of info to support both ways when I google this topic. So I can't wait to see the Endocrinologist and get his opinion. If he says no to me...that will be THREE no's. I have other bone issue's so I really thought they would want me on something now verse's later. Or at least do what Becky's GYN & Onc both agreed on...which was to give her Zometa twice a year at least. I think that is a great way to handle this. ----------------------------------------------------------------------------- Becky, That is exactly what I thought. But since I don't have a good relationship with my current onc...I went up to the City of Hope & got an onc opinion there on my last DEXA scan & its recommendations that I start on a bone strengthener. The onc at City of Hope said its not needed now but to see an Endocrinologist. There is SO MUCH information to digest on this subject. Can't wait to see what an Endo says. *Thanks to all for your input.* *Chelee* __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.