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Old 06-19-2007, 09:06 AM   #7
Shell
Senior Member
 
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Adriana-

I definitely would not wait until August. I tend to follow the 2 week rule for pain, but my onc asks me every time before treatment what symptoms I'm having, so we go to the tests rather quickly. I am totally non-medical, but the bone scan picks up only blastic lesions, and mine were lytic, and thus the MRI was required.

I start radiation to the area today for 10 days. I am concerned that the CTs I've been having every 2 months or so didn't pick it up, and I'm going to ask to have them re-read. I also had a pet/ct done yesterday from my "eyes to thighs" so that we can see if there are any surprises lurking.

The abraxane is fairly easy to tolerate - unfortunately I have been losing weight and am working diligently to keep the weight on - after all of those struggles to shed the 10 lbs. I always wanted to lose!!

The radiation should be very straightforward with few side effects, and while I hope yours is just a muscle-ache, I would get it checked out...

Kind regards,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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