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Joe,
it is obvious that they are in the formative stage (some parts of the site still
under construction) It was not the actual organization per se I thought that was impressive(by their website they obviously are not, at least not yet), just the fact there was a website where researchers could go
to request whether any participants would like to participate in research.
I have been barking around for a long time that it might be useful to see how many her2+ bc patients would allow their bone marrow to be biopsied at the end of treatment(and at the beginning and throughout treatment too, if that can be arranged) to see if that correlated with their prognosis.
This website, I think, works differently. Email addresses are private, unless one wishes differently and requests for possible participation are made by posting a thread.
I think the article jumped the gun. ACOR does not yet seem to be up and running efficiently (let's see if it ever does get there)
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