HER2 Support Group Forums - View Single Post - soy and phytoestrogens help hormonal negatives....

Andrea Barnett Budin · 06-14-2007, 01:36 PM

My NY oncol/hematol/nutritional expert says soy should only be nat'l and in moderation or soy powder only.

He has given me the nod in my groping to tame my hot flashes (which HRT did for the short while I was on it). Now of course, I won't HRT. Against mainstream thinking, I plead guilty to tripling my E to 1200 (as per PBS woman GYN who's face is in my head but name escapes me). I checked w/my cardiol who says not effecting my cholesterol/lipids so ok by him. I also dare to take black cohash extract 49 and evening primrose oil 1300 and Phto Formula (1 tiny scoop in OJ w/soy lechitin powder and lycopenes and antioxidants to fight free radicals) boost imm sys, Omega 3 1000 AM/PM -- improves brain function, detoxifies, heart healthy, anti-cancer. Mainstrm docs say no. NY onc who knows supplement info well and is w/NY Presbyterian says yes, and maybe even good for me. Have been on most of these since '98, and remain since '99 NED. So if you check w/yr onc, AS YOU MUST, you are likely to get a big NO. It is exasperating finding an onc who is holistic and understands supplements and vitamins upside down and backwards.

Oh, and I have been taking a plant estrogen isoflavone (as red clover extract 40) after my ON/GYN son-in-law showed me an article in one of his medical journals. He is always looking out for me, trying to quell my dripping wet all day condition (which calms at night w/Xanax, Ativan) but I don't feel comfortable taking those meds and driving.

Why am I NED since '99. Depends which school of thought you go by I think. So many factors contribute. Surely meditating, visualizing, directing my thoughts to be full of positivity, clarifying my EXPECTION and INTENTION with fervor, the supplement, Vit H, the wisdom of my 4 oncs in gen'l, loving support of husband and family and friends, writing daily, reading daily -- are all highly therapeutic, healing and importance in wellness, body, mind and soul... CHECK OUT LASTED POSTS ON "CONTROVERSAIL TOPICS" (click SEARCH above, and type in). Some contributors have a magnificent point of view on this mindbody link. Very inspiring. Uplifting. Sending loving, healing energy to all my Soul Sisters as always... ANDI

06-14-2007, 01:36 PM	#5
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Natural Soy In Moderation Or Soy Powder My NY oncol/hematol/nutritional expert says soy should only be nat'l and in moderation or soy powder only. He has given me the nod in my groping to tame my hot flashes (which HRT did for the short while I was on it). Now of course, I won't HRT. Against mainstream thinking, I plead guilty to tripling my E to 1200 (as per PBS woman GYN who's face is in my head but name escapes me). I checked w/my cardiol who says not effecting my cholesterol/lipids so ok by him. I also dare to take black cohash extract 49 and evening primrose oil 1300 and Phto Formula (1 tiny scoop in OJ w/soy lechitin powder and lycopenes and antioxidants to fight free radicals) boost imm sys, Omega 3 1000 AM/PM -- improves brain function, detoxifies, heart healthy, anti-cancer. Mainstrm docs say no. NY onc who knows supplement info well and is w/NY Presbyterian says yes, and maybe even good for me. Have been on most of these since '98, and remain since '99 NED. So if you check w/yr onc, AS YOU MUST, you are likely to get a big NO. It is exasperating finding an onc who is holistic and understands supplements and vitamins upside down and backwards. Oh, and I have been taking a plant estrogen isoflavone (as red clover extract 40) after my ON/GYN son-in-law showed me an article in one of his medical journals. He is always looking out for me, trying to quell my dripping wet all day condition (which calms at night w/Xanax, Ativan) but I don't feel comfortable taking those meds and driving. Why am I NED since '99. Depends which school of thought you go by I think. So many factors contribute. Surely meditating, visualizing, directing my thoughts to be full of positivity, clarifying my EXPECTION and INTENTION with fervor, the supplement, Vit H, the wisdom of my 4 oncs in gen'l, loving support of husband and family and friends, writing daily, reading daily -- are all highly therapeutic, healing and importance in wellness, body, mind and soul... CHECK OUT LASTED POSTS ON "CONTROVERSAIL TOPICS" (click SEARCH above, and type in). Some contributors have a magnificent point of view on this mindbody link. Very inspiring. Uplifting. Sending loving, healing energy to all my Soul Sisters as always... ANDI __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...