HER2 Support Group Forums - View Single Post - Speculation about chemo-induced anemia (and possibly leukopenia as well)

Andrea Barnett Budin · 06-12-2007, 11:44 AM

Following all the above post (from Apr to today) I marvel at yr wealth of info. I do my best to keep up. I just wanted to add that re chemo-related anemia my oncs have told me iron is not the answ for what I have. My NY onc/hematol/supplement and nutrition expert has helped me in the last mnth re my low energy and less access to even the half strength (150) Aranesp.

It believes soy to be taken only naturally or in powder form. It is the main (of 15 or so) ingredient in Phyto Formula (w/soy lechitin powder, spirulina barley grass powder, tomato powder, what grass powder + multiple powdered anti cancer lycopenes and antiox -- 1 scoop in potassium rich OJ. This plus NADH 5 mg Co Enz 1 X 2 (AM/PM on an empty stomach) -- biological rocket fuel, the biological form of hydrogen which reacts with the oxygen present in our cells to produce energy. Took a mnth to kick in, but I am clearly better, even without the Aranesp.

Used to get Aranesp if under 12. Now must wait for half dose under 11. As long as I feel like I have rocket fuel working for me, I don't care. Will see where 11.9 count 3 wks ago now is.

Also take 150 Co-Enz 10 X 2 a day for energy.

Does anyone know re the chromium link to ca what chromium 6 is vs the chromium picolinate4 that's supposed to boost energy and help regulate bld sgr?

The more I learn, the more questions I have. I LOVE -- ARE WE THERE YET? I'm adopting it. Whimsy is so full of positivity! Sending all you brilliant radiant Souls loving, healing energy along with my questions... ANDI

06-12-2007, 11:44 AM	#13
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	I Stand In Awe Following all the above post (from Apr to today) I marvel at yr wealth of info. I do my best to keep up. I just wanted to add that re chemo-related anemia my oncs have told me iron is not the answ for what I have. My NY onc/hematol/supplement and nutrition expert has helped me in the last mnth re my low energy and less access to even the half strength (150) Aranesp. It believes soy to be taken only naturally or in powder form. It is the main (of 15 or so) ingredient in Phyto Formula (w/soy lechitin powder, spirulina barley grass powder, tomato powder, what grass powder + multiple powdered anti cancer lycopenes and antiox -- 1 scoop in potassium rich OJ. This plus NADH 5 mg Co Enz 1 X 2 (AM/PM on an empty stomach) -- biological rocket fuel, the biological form of hydrogen which reacts with the oxygen present in our cells to produce energy. Took a mnth to kick in, but I am clearly better, even without the Aranesp. Used to get Aranesp if under 12. Now must wait for half dose under 11. As long as I feel like I have rocket fuel working for me, I don't care. Will see where 11.9 count 3 wks ago now is. Also take 150 Co-Enz 10 X 2 a day for energy. Does anyone know re the chromium link to ca what chromium 6 is vs the chromium picolinate4 that's supposed to boost energy and help regulate bld sgr? The more I learn, the more questions I have. I LOVE -- ARE WE THERE YET? I'm adopting it. Whimsy is so full of positivity! Sending all you brilliant radiant Souls loving, healing energy along with my questions... ANDI __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...