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Andrea Barnett Budin · 06-09-2007, 11:42 AM

HI ALL! I've posted this before but it can't hurt to repeat it. As someone who's been a poster child for Herceptin (been on it since '98 and holding...) -- I was always on Herceptin w/500 cc's saline. I drink lots of water ev single day. 10 glasses+. Flush toxins. Hydrate. Good for skin that is dry, nourishing. Once a new pharmacist gave me 250 cc's. I looked at the bag as they went to hang it on my pole and questioned its' different size. They checked. 250 cc's is the standard recommended protocol. That day, after Vitamin H I felt immediately very light-headed, shaky, weird, super fatigued. So since then I demand, and they accomodate my habit, 500 cc's. Swear it helps!

WHAT IS FEC???????

Hope every one does well, gets their butt into stable territory and stays there. Hope I can keep on keeping on. Much love... ANDI

06-09-2007, 11:42 AM	#20
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	HERCEPTIN + 500 CCs SALINE HI ALL! I've posted this before but it can't hurt to repeat it. As someone who's been a poster child for Herceptin (been on it since '98 and holding...) -- I was always on Herceptin w/500 cc's saline. I drink lots of water ev single day. 10 glasses+. Flush toxins. Hydrate. Good for skin that is dry, nourishing. Once a new pharmacist gave me 250 cc's. I looked at the bag as they went to hang it on my pole and questioned its' different size. They checked. 250 cc's is the standard recommended protocol. That day, after Vitamin H I felt immediately very light-headed, shaky, weird, super fatigued. So since then I demand, and they accomodate my habit, 500 cc's. Swear it helps! WHAT IS FEC??????? Hope every one does well, gets their butt into stable territory and stays there. Hope I can keep on keeping on. Much love... ANDI __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...