HER2 Support Group Forums - View Single Post - tykerb

Carolyns · 06-09-2007, 07:25 AM

Hi,

I asked my Dr. that question because I got the rash on the placebo but not with the real thing. I started taking Tykerb almost a month ago and no rash...go figure. Anyway, she said it is ABSOLUTELY not true that you must have a rash to have effective treatment.

I was in a trial last year with Femara and a 50 /50 chance to get Lapatinib / Tykerb. I remember being so thrilled when I had the rash, then I found out last month that I was in the placebo arm...whoops, I guess that's why they call it placebo effect. Last month I was put on Tykerb (for sure) and I do not have a rash.

I can tell you that after 3 weeks my CA 15 3 has dropped for the first time in 6 months. It was steadily climbing about 10 points per month since I went off of Gemzar and switched to Faslodex. I will have scans in 4 weeks and let everyone know then the scan results.

I look forward to hearing others respond.

Thanks, Carolyn

06-09-2007, 07:25 AM	#3
Carolyns Senior Member Join Date: Jun 2006 Location: South Florida Posts: 477	Hi, I asked my Dr. that question because I got the rash on the placebo but not with the real thing. I started taking Tykerb almost a month ago and no rash...go figure. Anyway, she said it is ABSOLUTELY not true that you must have a rash to have effective treatment. I was in a trial last year with Femara and a 50 /50 chance to get Lapatinib / Tykerb. I remember being so thrilled when I had the rash, then I found out last month that I was in the placebo arm...whoops, I guess that's why they call it placebo effect. Last month I was put on Tykerb (for sure) and I do not have a rash. I can tell you that after 3 weeks my CA 15 3 has dropped for the first time in 6 months. It was steadily climbing about 10 points per month since I went off of Gemzar and switched to Faslodex. I will have scans in 4 weeks and let everyone know then the scan results. I look forward to hearing others respond. Thanks, Carolyn