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Old 06-08-2007, 01:09 PM   #17
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Caya

Drink 10 glasses of water a day, to flush out all toxins, to hydrate and keep yur skin supple. Filtered and/or bottled water. Think of it as a prescription for wellness.

Co Enz Q10 -- I take 150 AM and 150 PM. More and more studies showing benefits. Argenine keeps heart strong and EF up.

If Imodium doesn't work, Wobenzm N -- 2 AM + 2 PM -- changed my life. Then came Effexor -- to help my hot flashes, which it failed to do, but keeps me cheery AND fixed my IBS (wc began w/Taxotere and remained for all these yrs, until...)

Slightly drippy nose. No aches or pains. Fatigue. Have supplements I take for that. Use vaseline in nostrils at night. Dry eye (since Taxotere) now under control w/Refresh + (has NO preservatives). Indiv little vials, one in AM, one at PM, sometimes one when I get up to pee middle of the night. Keep vials in pocketbk, on nightstand, near toilet and sink. Instant relief.

Have redness on upper arms and just under collarbone. Who knows what from? Oncs keep telling me we're in uncharted waters. Who's been on Herceptin since '98? No bk on longterm side effect, but heart strong, EF gd. ECHOs ev 6 mnths to be sure.

You sound like you're on the right path. Sending loving, happy, healthy energy your way... ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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