HER2 Support Group Forums - View Single Post

chrisy · 05-05-2007, 10:31 PM

Wow, Susan, I'm sure you didn't need THAT!
First, it is definitely worth it - don't ever lose heart or hope. Keep the faith and as Irene said, believe all this "care" you are receiving is for the good.
As for your oncologist, I'm sure that did take the wind out of your sails. What has your experience with him been prior to this major blunder? We do expect, and NEED, our doctors to be both realistic AND hopeful. At the same time we have to accept that they are also human (although sometimes I wish they were superhuman). My oncologist once snapped at me for asking about some crazy and utterly irrelevant "symptom" - I found out later that day that 3 of his other patients had gotten bad news that day.

I'm so sorry you were on the receiving end of such a thoughtless response - for whatever reason. Stay on track, stay with the fight.

Love
Chris

05-05-2007, 10:31 PM	#11
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Wow, Susan, I'm sure you didn't need THAT! First, it is definitely worth it - don't ever lose heart or hope. Keep the faith and as Irene said, believe all this "care" you are receiving is for the good. As for your oncologist, I'm sure that did take the wind out of your sails. What has your experience with him been prior to this major blunder? We do expect, and NEED, our doctors to be both realistic AND hopeful. At the same time we have to accept that they are also human (although sometimes I wish they were superhuman). My oncologist once snapped at me for asking about some crazy and utterly irrelevant "symptom" - I found out later that day that 3 of his other patients had gotten bad news that day. I'm so sorry you were on the receiving end of such a thoughtless response - for whatever reason. Stay on track, stay with the fight. Love Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure