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Hi Lu Ann; I've had alot of nerve pain in my right shoulder, arm and hand from axilla node involvement and lymphedema. Now that I've started Abraxane last week, and Tykerb this week the pain is almost gone. I didn't have extra tingling or numbness, just achey nerve type pain radiating up and down my arm. So I do think it could be pressure from fluid buildup, but also could be a lymph node between your breast and axilla that is enlarged.
Hopefully the new treatment will alleviate the symptoms and you'll start feeling better soon. Best wishes on Wednesday, I'll be keeping you in my prayers.
<3 Lolly
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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