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Old 04-30-2007, 06:04 PM   #16
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
Hey R.B., I love all of your information and just wanted to share. I used to take a billion things and when I remember and take the time to eat, I eat really well and have eaten well for years (pre-diagnosis even) i.e. all organic, whole grains, tons of fruits and vegetables-my favorite food is salad with olive oil-for real. I've never been a big meat eater, very rarely in my adult life and small amounts as a kid. Lots of garden veggies and some junk when I was a kid too. I love wild salmon and try to eat that weekly.

I took EVERYTHING throughout my diagnoses: cal/mag, antiox, b's, coq10, turmeric, quercitin, mushrooms, organic green drinks, garlic and efa's heavy on the 3's and all that kind of supplement stuff.

Then as we all share info and research and i do a lot of my own especially nutrition relate i started to get really confused about what might interfere w/ chemo, herceptin (i've even tried to understand what substrates are). I also got confused by hormone receptor status and flax, as one example, and what is preventative vs. proliferative.

So now I just don't know what to take given whatever drugs I am on (meaning chemo, not like heroin or anything). I am taking Fishsmart Ultra by Renew life anywhere from 300-900mg (epa) and 200-600 (dha)/day. I also take my probitics too.

So, I don't know what to do given all the variables. As an experiment I stopped taking all of the other stuff during this time of stability on navelbine/herceptin to see if we would get tumor regression i.e. was anything I was on interfering with chemo.

I wish I could get a very researched, balanced customized supplement plan given that I am stage IV, her +++, er+/pr+ on navelbine/herceptin with a potential for tykerb/xeloda in the future.

just volunteering too much information as usual.

thank you for all of your interest and information.
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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