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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Hi RB - Here is a good book that I found... and I consult with the doc who wrote it. He is in Seattle, I am in Texas, but I make phone appointments and he offers me a plan based on what my onc has me doing. He consults with my onc first and likes to be updated on my progress and/or set-backs. Of course I need to call him tomorrow due to my treatment changes.
Honestly, I have been a bit lazy about his supportive and integrative supplement plan since I last talked to him in October, but it is time for me to get serious again. He doesn't go to the fringes with anything, he sticks close to conventional supplementation (although he knows what the fringes are doing and you can ask him about it...he will give his opinion). With me, he mostly works with vitamins (dosaging is one of the most important aspects, what you can and can't take when you are on certain chemos) as well as a few extras like L-glutamine, etc. He's not much of a fan of anything that has no true regulations in place (chinese herbs) for chemo patients, and he does sell certain brands vitamins (they are formulated specifically for his dosages.) What I have found is that his vits are equal in price or less than what I used to buy at Whole Foods. And he has total control over the ingredients that go into them.
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In Complementary Cancer Therapies, Dan Labriola has written a book that attempts to bridge the gap between “conventional” and “alternative” medicine for the patient with cancer. As such, this volume meets a need that has not been successfully addressed elsewhere. Most of what is written on other books for the lay reader emphasizes one approach to exclusion (and often denigration) of the other. Yet many who have recently received a diagnosis of this dreaded disease are actively searching for all available means to relieve their suffering, prolong their lives, and (if possible) achieve a cure. I am a “conventional” practitioner, but one who is well aware that patients use “alternative” therapies. If such therapies are to be employed, it is important to recognize that they have biological effects. Some may be helpful, others harmful. Harm is an especially likely consequence when one agent competes with another and decreases the antitumor efficacy.
Unfortunately, most forms of alternative therapy have not been subjected to rigorous testing by the scientific method. Incentives to do this have been lacking since there is a little financial reward and the agents employed are not regulated by the government like prescription drugs are. Such testing is, however, now underway; some of it sponsored by the federal government. As more information based on randomized trials become available, it should be possible for the cancer patient to make more intelligent choices about what, if any, alternative therapies to elect.
In the meantime, Dr. Labriola offers what information exists regarding the potential usefulness of the naturopath’s armamentarium. He also provides pithy, readily understood summaries of how various cancers are staged and treated according to “conventional” approaches. The toxicities of the latter are well described, but fairly.
This volume can serve as a valuable reference for practitioners on both sides of the present fence. Most important, it should act as a resource and advisor for the perplexed patient or family member who is in between.
~ Forward written by Robert B. Livingston, M.D., Professor of Medicine, University of Washington School of Medicine, and Chief of the Division of Oncology, University of Washington Medical Center.
“…loaded with information for anyone with cancer.” Bernie Siegel, M.D., author of the best-selling Love, Medicine, and Miracles and Prescriptions for Living
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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