HER2 Support Group Forums - View Single Post

lkc Gumby · 04-28-2007, 03:51 PM

Hi Laurie,

When my onc first examined me his clinical exam was " probably stage 1" ,
the following week I had the first of my surgeries , and wound up with stage IIIC, which did freak me out, as I was diligent with SBE and mamos. ( I found my lump too)
Anyway that was back May 05, and Herceptin was just being discussed for non metastatic BC.
Wahooo, I was able to go on and am still on Herceptin( Its been 18 mos ) My onc down here is awaiting the results of the 2yr study.
I am NED and remember well being wheeled into surgery reading the frontpage article in Newsweek aboutthe success of Herceptin.
I get it every 3 weeks and aside from a runny nose, I haven't had any problems.
Although HER pos tumors are aggressive and fast growing the arsenal available now is amazing.
Please continue to be your own advocate and question everything. If you don't feel comfortable asking questions, please consider a second opnion.
I wish you well.
God Bless,
Linda

04-28-2007, 03:51 PM	#6
lkc Gumby Senior Member Join Date: Feb 2006 Posts: 437	Hi Laurie, When my onc first examined me his clinical exam was " probably stage 1" , the following week I had the first of my surgeries , and wound up with stage IIIC, which did freak me out, as I was diligent with SBE and mamos. ( I found my lump too) Anyway that was back May 05, and Herceptin was just being discussed for non metastatic BC. Wahooo, I was able to go on and am still on Herceptin( Its been 18 mos ) My onc down here is awaiting the results of the 2yr study. I am NED and remember well being wheeled into surgery reading the frontpage article in Newsweek aboutthe success of Herceptin. I get it every 3 weeks and aside from a runny nose, I haven't had any problems. Although HER pos tumors are aggressive and fast growing the arsenal available now is amazing. Please continue to be your own advocate and question everything. If you don't feel comfortable asking questions, please consider a second opnion. I wish you well. God Bless, Linda __________________ Linda Dxed Stage IIIC May 05, 12 pos nodes er/pr -neg,Her -pos LVI Right partial mast & partial axillary dissection-June14,2005 Right modified mast-no clear margins- June 30, 2005 DD AC x4 Taxotere X4 with Herceptin Rads x 35( 5 fields ) Left prophylactive mast( atypia & hyperplasia found ), put on Tamoxifen x 1 yr; D/ced due to endometrial thickening bilateral recon (saline implants)May 06 Nipple recon July 06 metformin 2010 removal of implants due to severe encapsulation, insertion of gummies 2013 Reclast Q yr NED!!!