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suzan w · 04-26-2007, 02:15 PM

As you can see by my signature, I had a very small tumor...agressive (invasive lobular) but small. At the time my oncologist would have given me herceptin without chemo (it had not yet been approved by FDA for use in early stage bc) when most oncologists would not give herceptin WITHOUT chemo first. I had the oncotype DX test done-showed high intermediate risk for recurrence (since have learned that most of us Her2+ have a high score on that test...). I opted for the chemo as I wanted to leave no stone unturned and go for the most agressive treatment possible. I did not want to look back one day and say, "Gee, I wish I had done..." My oncologist was very supportive and I have no regrets! Good luck in your decision.

04-26-2007, 02:15 PM	#8
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,747	As you can see by my signature, I had a very small tumor...agressive (invasive lobular) but small. At the time my oncologist would have given me herceptin without chemo (it had not yet been approved by FDA for use in early stage bc) when most oncologists would not give herceptin WITHOUT chemo first. I had the oncotype DX test done-showed high intermediate risk for recurrence (since have learned that most of us Her2+ have a high score on that test...). I opted for the chemo as I wanted to leave no stone unturned and go for the most agressive treatment possible. I did not want to look back one day and say, "Gee, I wish I had done..." My oncologist was very supportive and I have no regrets! Good luck in your decision. __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!