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Sheila · 04-26-2007, 04:58 AM

Taffy

I seemed to feel a little more tired the week I was off....maybe all those pills! Also, remember to drink plenty of water, Xeloda made me thirsty so that wasn't a problem. I have to get my blood counts checked after being off a week...do you? So far mine have been fine. I think you will do great on this with little or no side effects...the hand foot syndrome seems to be cumulative, so more prevelant after taking it a while....my fingertips do crack and get sore, so I use plenty of Ahava lotion on feet and hands...it is made in Israel, but you can purchase it at www.deadseaminerals.com
....it is shipped from Israel....I tried many things and this is the only one that worked for me. I also wear comfy shoes...flip flops....they seem to work the best and make my feet feel good.
Hope this helps. One more thing, they do tell you if you develop diahrrea from it, call the Dr. as they will reduce the dosage...I never had any problem.

04-26-2007, 04:58 AM	#8
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Taffy I seemed to feel a little more tired the week I was off....maybe all those pills! Also, remember to drink plenty of water, Xeloda made me thirsty so that wasn't a problem. I have to get my blood counts checked after being off a week...do you? So far mine have been fine. I think you will do great on this with little or no side effects...the hand foot syndrome seems to be cumulative, so more prevelant after taking it a while....my fingertips do crack and get sore, so I use plenty of Ahava lotion on feet and hands...it is made in Israel, but you can purchase it at www.deadseaminerals.com ....it is shipped from Israel....I tried many things and this is the only one that worked for me. I also wear comfy shoes...flip flops....they seem to work the best and make my feet feel good. Hope this helps. One more thing, they do tell you if you develop diahrrea from it, call the Dr. as they will reduce the dosage...I never had any problem. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin