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NOT Weird; Julie, I feel the same things, and have to make sure I'm holding the rail going down stairs etc. That's not to say the MRI isn't a necessity, it is. Many (too many) have had NO SYMPTOMS and had brain mets show up on routine MRI's. The good news as I'm sure you know, is they're usually treatable if caught while small and small in number.
Fortunately (!), I get headaches so my onc has been able to order them annually for me just to "be sure" it's not mets. However, am having one this Friday because of dizzyness while sitting, an infrequent but new symptom for me.
Keep insisting you want the scan, it's a must for us HER2+'s.
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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