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Just a thought here. Why don't you talk to Christine and Joe about this rather than, creating another web site. I for one am on 4 message boards this being the one I depend on for support. If I don't find what I need here all I have to do is ask for it and I get it. If I feel the need I will call Christine and she is always ready to help. The other boards are good but they take the back seat and I rarely, ever post on them-as I don't have the time or energy. I am sure you will hear from others but this is just my thought. Good luck, hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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