HER2 Support Group Forums - View Single Post - Recurrance Too

chrisy · 04-11-2007, 08:54 PM

Well Julie, WHAT THE HECK! (I really wanted to use a different word there...)

I think that's good news that it is still only in the liver and "so tiny" - I say that quoting my UCSF who said that about the 16mm spot that showed up on MY CT. Sounds plenty big to me! But also a bit reassuring to hear that from a top doc. And still confined to the liver means that options such as RFA (or more) may still be available to you.

Also sounds like good news to hit it with new/different targeted therapy if possible - the less heavy chemo the better in my book. Of course, the Tykerb/Xeloda is not without side effects, but my understanding is that it is "easier" than, say, a taxane.

Good luck with the new combo. Please let us know how you're doing - I think about you a lot (having gone to school nearby at ISU) and worry about you!

Take care
Chris

04-11-2007, 08:54 PM	#3
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Well Julie, WHAT THE HECK! (I really wanted to use a different word there...) I think that's good news that it is still only in the liver and "so tiny" - I say that quoting my UCSF who said that about the 16mm spot that showed up on MY CT. Sounds plenty big to me! But also a bit reassuring to hear that from a top doc. And still confined to the liver means that options such as RFA (or more) may still be available to you. Also sounds like good news to hit it with new/different targeted therapy if possible - the less heavy chemo the better in my book. Of course, the Tykerb/Xeloda is not without side effects, but my understanding is that it is "easier" than, say, a taxane. Good luck with the new combo. Please let us know how you're doing - I think about you a lot (having gone to school nearby at ISU) and worry about you! Take care Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure