I saw my onc for the 1st time since my last herceptin and she said my yr of herceptin is up. To set-up a date right away & have my port pulled. (Wow..lets waste no time!) But I think my onc & surgeon were kind of in a hurry for me to pull mine because of the enlarged lymph nodes in that left axilla where the port runs through there. (Process of elimation to see if that is the cause of the pain I've had under my arm and those enlarged nodes.) I've complained of constant pain in axilla.
I felt a bit un-comfortable being told to have it pulled ASAP. I wasn't ready for that. Many keep theirs for a while just in case. But she wants mine out now and said there is no reason to keep it. So I guess I will be getting mine out right away rather I want to or not. I just assumed until I got to the 2 yr mark they might want to keep it in especially with my bc history. Positive nodes & all...obviously not. I have NO veins at all to use lab work or anything...so this will be interesting. (It would be nice if the pain in my axilla left though.) 
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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