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Ibc
Sandy, I have not yet tried Doxil, though I have heard it only causes hair loss in 20% of users. I was sorry to hear of your results, but I also feel that you are such a fighter and have been so for the past 5 years (far longer than they once gave us IBC patients) and I feel you have many more years ahead. I closely watch your progress as we have the same cancer. I will be starting Tykerb/Xeloda next week and wonder how you did on that. The best treatment I have experienced so far is the Navelbine/Herceptin, but I can't do that forever. I am praying that a new drug for skin mets reaches the market soon. My love and prayers are with you. Pleaase let me know how the Doxil works for you and I will keep looking for new answers to IBC. My friend is in an HKI 272 trial in Colorado (she flies out there every 2 weeks) and said her tumors have shrunk by half and her skin mets have disappeared after only 5 weeks. It is a drug similar to Tykerb. Sending you my love today, Vickie
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