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Joe (Surveys & Polls)
Joe
I am new to the site. Have you done any surveys or polls? I would love to know things like:
1.) How many women exerience decreased libido on AI's?
2.) How many women think their oncol avoids discussion concerning libido?
3.) How many women have stopped having intercourse after AI's or chemo due to lack of interest or extreem discomfort?
4.) How many women had to stop Herceptin before 1 year?
5.) How many women had microcalcifications before CA diagnosis?
6.) How many women had bloody discharge before CA diagnosis?
Is there anyway we could submit questions to you for a site survey? I believe there are many in the ranks who do not want to write narratives, but would participate in a survey. If this has already been done in the past, or is just to difficult or time consuming please forgive me.
Thank you for this excellent site!!!!!!!!!!!!! Peace Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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