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Hopeful (great name),
I had originally decided to pay for the Oncogene test myself until I read on a number of sites, including John Hopkins, that the test was not done for women who are ER/PR negative and HER2 positive. It was stated somewhere (don't remember where but probably on this site) that all women with HER2 positive cancers are considered high risk. However, that seems to be contradicted by "mjz's" experience.
Nowadays I have shorter vision. After my experience with tumor marker elevations, and the stress it puts on me, I take the coward's way out and prefer not to know. My rationale is if I do everything I'm supposed to (treatment, scans, visits to doctor) it won't help me to know that I'm likely to recur in one year, two years, or ten years, or never. I hold on rather tightly to my stage 1a diagnosis, knowing that it's false courage but preferring it all the same.
I'm prograstinating big time today, writing anything but what I should be writing. I wonder if I can blame this on chemo brain!
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