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suzan w · 03-26-2007, 08:49 AM

As you can see by my 'signature' I finished chemo in Oct. 05 and Herceptin in Oct. 06. I am still taking arimidex...my 5 years of that will be up in Oct. 2010...lingering stuff that I notice...I do have some cognitive issues that are gradually improving, mostly word recall-especially if I am agitated! And then when I can't recall the word, I get more agitated...I have alot of joint aches, mostly knees and thumbs now but they seem to move from joint to joint. Again, much less severe than when I first started. I still get nosebleeds( which started when I began Herceptin), went to my reg doctor last month after a particularly bad one because I was sure I had something dreadful, and she did a full battery of bloodwork and turned up nothing! I hate worrying about every little ache and pain and wish there were some magic scan that I could have once a month that would look at everything and reassure me!!!

03-26-2007, 08:49 AM	#5
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,744	As you can see by my 'signature' I finished chemo in Oct. 05 and Herceptin in Oct. 06. I am still taking arimidex...my 5 years of that will be up in Oct. 2010...lingering stuff that I notice...I do have some cognitive issues that are gradually improving, mostly word recall-especially if I am agitated! And then when I can't recall the word, I get more agitated...I have alot of joint aches, mostly knees and thumbs now but they seem to move from joint to joint. Again, much less severe than when I first started. I still get nosebleeds( which started when I began Herceptin), went to my reg doctor last month after a particularly bad one because I was sure I had something dreadful, and she did a full battery of bloodwork and turned up nothing! I hate worrying about every little ache and pain and wish there were some magic scan that I could have once a month that would look at everything and reassure me!!! __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!