View Single Post
Old 03-22-2007, 05:50 AM   #7
Shell
Senior Member
 
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Eric-

I'm not surprised to hear your onc say this treatment is minor, but I am really surprised to see the side-effects your nurse listed - it is absolutely the H/F syndrome and the diarrhea that are the MAJOR impediments to feeling good on this combo...

I am prone to mouth sores anyway and never had that as a side effect. Moreoever, I was never nauseous or queazy re food at all.

I strongly recommend that you go to the www.xeloda.com site and print out their treatment diary. Because the meds are oral, you don't see the onc as much, and it really gets hard to remember day to day what you were feeling. The best cream that I found was the udderly smooth udder cream, which my local drugstore carried. I also took the b-6, and as I was on xeloda with or w/out tykerb for over 15 months, immodium ad became my good friend as well.

Please be sure to report the onset of any H/F immediately to your onc, as there may be options to reduce the dosage to manage the symptoms. You'll hear differerent mg of the xeloda people take, but remember it is based on body weight/mass, so unless you know their weight, you're comparing apples and oranges. The original dosage I thinkwas 2500mg/m2, but from the archives here you'll see people have done well on less than that....

I was in the clinical trial that led to approval for tykerb, and I wish your wife only the best on it!!!

Good luck w/ things,
__________________
Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
Shell is offline   Reply With Quote