HER2 Support Group Forums - View Single Post

chrisy · 03-20-2007, 09:47 PM

Janet,

I've had echos and they have bounced around. I think the last ones were 63, 59, 69. Some on this board have theorized that timing of the test with your herceptin timing might make a difference, I don't know if that's true or not, but clearly these numbers can jump up and down, and back up again!

As you say, tho, it sure can't hurt to do all those "heart healthy" things like walking and eating good. My rockstar oncologist told me that there was "nothing you can do" to help prevent heart toxicity, but then in she said just do the things you would normally do (eat and exercise) I guess there's just no way around that! LOL. I also do believe that CoQ10 helps.

By the way, your little "bargaining" about the gym reminded me of a joke in honor of St Patty's day I heard today:

Ol Paddy O'Brien was really sweating in his car - he was late for a meeting and couldn't find a parking place.

"OK Lord, if you help me find a parking place, I promise I'll go to church every Sunday for the rest of me life" he prayed
Miraculously, a parking place opened up right in front of him!

"Oh, never mind, Lord, I found one"

Totally irrelevant, but it made me laugh...
Take care

Chris

03-20-2007, 09:47 PM	#5
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Janet, I've had echos and they have bounced around. I think the last ones were 63, 59, 69. Some on this board have theorized that timing of the test with your herceptin timing might make a difference, I don't know if that's true or not, but clearly these numbers can jump up and down, and back up again! As you say, tho, it sure can't hurt to do all those "heart healthy" things like walking and eating good. My rockstar oncologist told me that there was "nothing you can do" to help prevent heart toxicity, but then in she said just do the things you would normally do (eat and exercise) I guess there's just no way around that! LOL. I also do believe that CoQ10 helps. By the way, your little "bargaining" about the gym reminded me of a joke in honor of St Patty's day I heard today: Ol Paddy O'Brien was really sweating in his car - he was late for a meeting and couldn't find a parking place. "OK Lord, if you help me find a parking place, I promise I'll go to church every Sunday for the rest of me life" he prayed Miraculously, a parking place opened up right in front of him! "Oh, never mind, Lord, I found one" Totally irrelevant, but it made me laugh... Take care Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure