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Eric and Caryn,
You can do it again! And as the others have said, Herceptin could still be on the table; I've recurred 3 times, and am still on Herceptin. My onc believes a successful chemo can be revisited also, so each recurrence has been treated with the addition of Navelbine; did finally have to move on to other chemos as this latest recurrence didn't respond as well.
And Tykerb is there as backup!
You've gotten much excellent advice, just wanted you to know you're in my thoughts and prayers as you contemplate options and plan your strategy.
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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