Hi All,
Just landed back to London today, I had a great trip and I had such a great time. It was great to meet you in person girls! It is great to get together, thank you for your enthusiasm and great responses.
Thank you AlaskaAngel to organise the meet, things had been rushed my ends as as soon as I found out I was eligible for the vaccination I had to start the trial straight away (to be withinthe the 6 months Herceptine maintenance criteria).
I am actually shattered from travelling right now and will get some good picks together and my thoughts organised as soon as possible, my internet access was limited whilst I was away.
I have not yet booked for my next flights but will do soon after I see what route and time works out the cheapest.
Lots of love to all and more soon
Kx
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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