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Old 03-08-2007, 06:00 PM   #4
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Hi Kriss


I had bad leg pain on Taxol. It is a side effect. It seems (to me) almost electrical. It was bad. I will say that moving around helped more than laying around but I still didn't do much. I thought (overall) that AC was worse but Taxol was no treat. I am not sure how you are doing the Taxol as I didn't look at your signature. I did Herceptin after chemo and not with the Taxol (but your bone and leg pain are from the Taxol and not Herceptin). I did taxol dense dose every 2 weeks. The pain was basically gone by the next treatment. Also, I was very allergic to the emulsifier in taxol (it is the emulsifier in it that folks are allergic to and not the taxol active) so I had benadryl IV the whole time and pills of it every 4 hours for the first 24 hours. My lips would swell and my onc gave me an epi-pen just in case so in many respects, taxol was worse for me because I worried so much about the allergic aspect. Since you did not get this the first time, it will not be a side effect.

I do feel your pain (no pun intended). Take Advil LiqCaps. They do help alot.

The pain tends to subside greatly after about 4-5 days.

Hug to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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