HER2 Support Group Forums - View Single Post - The bc patient has NO rights! I'm tossed out!

Chelee · 03-08-2007, 01:16 AM

Lolly, Yes, I have had on my husband with me on *most* of my appts. So I have a witness to everything. I just can't get over the reasons for wanting me out of the cancer center...yet I can prove everything they said is a lie. Amazing. But I had to see my GP due to a bad sore throat. We talked a bit. I told him what their plans are & how I will NOT go away quietly. (Meaning I will contact anyone that will listen & an attorney.) I *think* the word got back to my group because NOW they are going to go through with my mastectomy & my ooph which they had been putting off. (Although I am not as comfortable having surgery with people that are angry with me.) They know its patient abandoment if they don't follow through. If your in ACTIVE trt they can't toss you. I'm still doing herceptin.

I am hoping my surgeon which I have always got along with until I filed this grievance against my onc will still put his feelings aside & be MORE concerned about HIS reputation and still do a good job on me. I've talked to the surgeons nurse which is super nice and she acts like their is no problem and for me not to worry at all. She was even telling me who I should contact about my onc NOT examing me. My surgeon did a great job on my right side...so I will have to have faith and trust he will do this other one just as well. He knows my complaint was NOT about him anyway...it was only my onc. I just want to get this mastectomy & ooph done so I will have some relief since I've been pulled off femara & left with nothing! Inbetween the surgeries I believe I will have 30 or 60 days to find a new onc and other doctors. The HMO said they HAVE to give me time and CAN'T just throw me out on the street or it is abandoment which they would be in big trouble for. So needless to say I am STILL stress out...all this is too much. Alot on my plate at once.

Now that I FINALLY got the approval for my two surgeries...I will make calls and keep things quiet until I get those done. I do KNOW for a fact the letter is coming any day. I have NOT seen the actually letter yet that will tell me why I am being asked to leave, but actually I can't wait to see it. I'm dying to see what they said. My main concern now is to find someone to arrange a new place for me CLOSER! There is NO WAY I am driving 98 miles with *all* the appts I have. I think a disablity lawyer can fix that for me? I will take one day at a time...I've been so stressed its hard to even think straight.

Thanks to ALL of you that gave me ideas, encouragement, support, directions to go on how to handle this. Its overwhelming to have such support. I don't have any here at home...so this means the world to me. This has been such a difficult time for me. I just didn't need all this on top of my DX. These people down there are cruel. How can they treat a bc patient like this when they know all I was upset about is my onc that admits to NOT examing me and WON'T answer questions. My onc doesn't even deny it. Techically I am not being treated and haven't been for a year IMHO. I would think they should be worried about that? (But maybe not?)

Chelee

03-08-2007, 01:16 AM	#19
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Lolly, Yes, I have had on my husband with me on most of my appts. So I have a witness to everything. I just can't get over the reasons for wanting me out of the cancer center...yet I can prove everything they said is a lie. Amazing. But I had to see my GP due to a bad sore throat. We talked a bit. I told him what their plans are & how I will NOT go away quietly. (Meaning I will contact anyone that will listen & an attorney.) I think the word got back to my group because NOW they are going to go through with my mastectomy & my ooph which they had been putting off. (Although I am not as comfortable having surgery with people that are angry with me.) They know its patient abandoment if they don't follow through. If your in ACTIVE trt they can't toss you. I'm still doing herceptin. I am hoping my surgeon which I have always got along with until I filed this grievance against my onc will still put his feelings aside & be MORE concerned about HIS reputation and still do a good job on me. I've talked to the surgeons nurse which is super nice and she acts like their is no problem and for me not to worry at all. She was even telling me who I should contact about my onc NOT examing me. My surgeon did a great job on my right side...so I will have to have faith and trust he will do this other one just as well. He knows my complaint was NOT about him anyway...it was only my onc. I just want to get this mastectomy & ooph done so I will have some relief since I've been pulled off femara & left with nothing! Inbetween the surgeries I believe I will have 30 or 60 days to find a new onc and other doctors. The HMO said they HAVE to give me time and CAN'T just throw me out on the street or it is abandoment which they would be in big trouble for. So needless to say I am STILL stress out...all this is too much. Alot on my plate at once. Now that I FINALLY got the approval for my two surgeries...I will make calls and keep things quiet until I get those done. I do KNOW for a fact the letter is coming any day. I have NOT seen the actually letter yet that will tell me why I am being asked to leave, but actually I can't wait to see it. I'm dying to see what they said. My main concern now is to find someone to arrange a new place for me CLOSER! There is NO WAY I am driving 98 miles with all the appts I have. I think a disablity lawyer can fix that for me? I will take one day at a time...I've been so stressed its hard to even think straight. Thanks to ALL of you that gave me ideas, encouragement, support, directions to go on how to handle this. Its overwhelming to have such support. I don't have any here at home...so this means the world to me. This has been such a difficult time for me. I just didn't need all this on top of my DX. These people down there are cruel. How can they treat a bc patient like this when they know all I was upset about is my onc that admits to NOT examing me and WON'T answer questions. My onc doesn't even deny it. Techically I am not being treated and haven't been for a year IMHO. I would think they should be worried about that? (But maybe not?) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.