HER2 Support Group Forums - View Single Post - The bc patient has NO rights! I'm tossed out!

Lolly · 03-05-2007, 10:53 AM

Chelee, I've been following your posts on this ordeal you're going through and just want to let you know you're in my thoughts and prayers. Also it occurs to me to ask if you have someone who goes with you to your appointments to take notes and be a second pair of eyes and ears? If not, perhaps the local bc support group could put you in touch with a volunteer who could take on that role. It's can be an invaluable source of support and comfort to have an ally when you're in this kind of situation.
Big Hus to you,
<3 Lolly

03-05-2007, 10:53 AM	#13
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Chelee, I've been following your posts on this ordeal you're going through and just want to let you know you're in my thoughts and prayers. Also it occurs to me to ask if you have someone who goes with you to your appointments to take notes and be a second pair of eyes and ears? If not, perhaps the local bc support group could put you in touch with a volunteer who could take on that role. It's can be an invaluable source of support and comfort to have an ally when you're in this kind of situation. Big Hus to you, <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.