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Sandy H · 02-23-2007, 06:33 PM

Michelle, are you IBC as you said you were diagnosed stage 111b? I was told anyone diagnosed at stage 111b is IBC if not IBC then it will be 111a or c. Where it has been 3 years perhaps, you should leave well enough alone. This has to be your decision of course. Also can you get an oncologist do bil now and will your insurance pay for it? Also if you have reconstructions you are looking at lots of surgery and healing here. You can end up with infections as I am starting to get paranoid of these hospital infections these days. My sister died from one. Don't want to scare you but as a nurse I am sure you understand where I am coming from. These are things to research and think about. Maybe, you can talk to a few oncologist and see what they suggest. Wishing you well in whatever you decide to do and keep us posted. hugs, Sandy

02-23-2007, 06:33 PM	#7
Sandy H Senior Member Join Date: Feb 2005 Location: Norridgewock, Maine Posts: 778	Wow, a big decision! Michelle, are you IBC as you said you were diagnosed stage 111b? I was told anyone diagnosed at stage 111b is IBC if not IBC then it will be 111a or c. Where it has been 3 years perhaps, you should leave well enough alone. This has to be your decision of course. Also can you get an oncologist do bil now and will your insurance pay for it? Also if you have reconstructions you are looking at lots of surgery and healing here. You can end up with infections as I am starting to get paranoid of these hospital infections these days. My sister died from one. Don't want to scare you but as a nurse I am sure you understand where I am coming from. These are things to research and think about. Maybe, you can talk to a few oncologist and see what they suggest. Wishing you well in whatever you decide to do and keep us posted. hugs, Sandy __________________ Dx. 03/01, Rt. IBC AC/Taxatere Rt. MRM-with graft Lt. simple 5 rads-skin mets Herceptin, taxol, carboplatin (taxol seem to be the magic drug) Navelbine & xeloda (did not work) topical miltex for skin mets Tykerb/xeloda thoracentesis x 2 left lung fluid shows cancer cells Port removal (4 years) with power port replacement Doxil Updated 05-07 Scans show no bone or organ involvement we shall see! I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.