HER2 Support Group Forums - View Single Post

Becky · 02-23-2007, 01:11 PM

I am not sure there are PTEN promoters. Theorectically, there can be active PTEN, no PTEN or an inactive form. Obviously, there may be little you can do if PTEN is not present. However, the inactive form has been shown in a petri dish to be activated with beta glucan - an active ingredient in maitake mushrooms. When I was on Herceptin, I took maitake (still do but not as much). I can't even tell you how much to take - it may be a moot point that I took it as the amount may have been insignificant. I took 100% dried maitake that was 575 mg per capsule - 9 capsules per day (3 with each meal).

Never had a Pet/Ct but heard they're not bad. Local recurrences do not mean that Herceptin did not work in your body. Scar tissue is extremely difficult for chemo or Herceptin to penetrate due to poor circulation in scar tissue so if rads didn't "get it" or if you had no rads, that is usually what happens as chemo and/or Herceptin do well everywhere else but that darn scar.

Probability is in your favor that the rest of you is clean as a whistle but the Pet scan is important to ensure this.

Try to rest easy.

02-23-2007, 01:11 PM	#2
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	I am not sure there are PTEN promoters. Theorectically, there can be active PTEN, no PTEN or an inactive form. Obviously, there may be little you can do if PTEN is not present. However, the inactive form has been shown in a petri dish to be activated with beta glucan - an active ingredient in maitake mushrooms. When I was on Herceptin, I took maitake (still do but not as much). I can't even tell you how much to take - it may be a moot point that I took it as the amount may have been insignificant. I took 100% dried maitake that was 575 mg per capsule - 9 capsules per day (3 with each meal). Never had a Pet/Ct but heard they're not bad. Local recurrences do not mean that Herceptin did not work in your body. Scar tissue is extremely difficult for chemo or Herceptin to penetrate due to poor circulation in scar tissue so if rads didn't "get it" or if you had no rads, that is usually what happens as chemo and/or Herceptin do well everywhere else but that darn scar. Probability is in your favor that the rest of you is clean as a whistle but the Pet scan is important to ensure this. Try to rest easy. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"