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Chelee · 02-22-2007, 01:59 AM

Belinda, My chances of getting a new onc at his point is nil to none! This place has DENIED *every* request I have made. Even for a 6 month mammo, a rads onc 2nd opinion and a change of onc. I don't know what their problem is but I CAN'T do anything here. (What are they AFRAID of?!) I have a RIGHT to change onc if the one I have will NOT answer questions OR exam me! Now that I have ALL her progress notes I can prove it. She buries herself with these notes, they prove everything I was complaing about and then some! But she actually said due to my deformity there is no reason to exam me. I'm insulted! She's a doctor...there is NO excuse for NOT examing me. Talk about a poor excuse!

I'm also not very happy to read all her notes and see HOW many things she did NOT tell me about. I told her from day one I WANT to know everything concerning me. She did like exactly what your surgeon did to you...hide things from me that I had to find out another way.

Belinda, I have already jeopardized my trt by filing a grievance about this onc. My life has been a living nighmare since then. They treat me awful since I did that. I'm on their sh$% list. I was told they can NOT retaliate against me for filing a complaint...but thats NOT true. Your life is over if you carry out any grievance or complaint. They want me GONE. But will only LET me go to the ONE place I said I CAN'T drive too. (Tell me thats not on purpose.) I keep calling and trying to find the one RIGHT button to fix this mess...but these people are un-touchable. The HMO and group can do what they want to a cancer patient. (Its all I can do to deal with my bc and my Moms newly DX of advanced lung cancer...now they enjoy being cruel to me when all I wanted was the NEW onc that joined the group...thats NOT asking much.

Chelee

02-22-2007, 01:59 AM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Belinda, My chances of getting a new onc at his point is nil to none! This place has DENIED every request I have made. Even for a 6 month mammo, a rads onc 2nd opinion and a change of onc. I don't know what their problem is but I CAN'T do anything here. (What are they AFRAID of?!) I have a RIGHT to change onc if the one I have will NOT answer questions OR exam me! Now that I have ALL her progress notes I can prove it. She buries herself with these notes, they prove everything I was complaing about and then some! But she actually said due to my deformity there is no reason to exam me. I'm insulted! She's a doctor...there is NO excuse for NOT examing me. Talk about a poor excuse! I'm also not very happy to read all her notes and see HOW many things she did NOT tell me about. I told her from day one I WANT to know everything concerning me. She did like exactly what your surgeon did to you...hide things from me that I had to find out another way. Belinda, I have already jeopardized my trt by filing a grievance about this onc. My life has been a living nighmare since then. They treat me awful since I did that. I'm on their sh$% list. I was told they can NOT retaliate against me for filing a complaint...but thats NOT true. Your life is over if you carry out any grievance or complaint. They want me GONE. But will only LET me go to the ONE place I said I CAN'T drive too. (Tell me thats not on purpose.) I keep calling and trying to find the one RIGHT button to fix this mess...but these people are un-touchable. The HMO and group can do what they want to a cancer patient. (Its all I can do to deal with my bc and my Moms newly DX of advanced lung cancer...now they enjoy being cruel to me when all I wanted was the NEW onc that joined the group...thats NOT asking much. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.