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Old 02-19-2007, 05:43 AM   #5
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Shannon

I don't believe you were on the board yet when I took on my hospital in Chicago for overcharging on Herceptin....with the help of many on this board...i was able to gather info on what people are paying or being charged for Herceptin all over the country....I even went to a different clinic and oncologist for 1 treatment to prove my point....the insurance company (BCBS of IL) would not argue the charges, the hospital would not budge, so I filed a complaint with the IL Attorney General....the hospital reduced their price for everyone on Herceptin and even retoactive reimbursement to the insurance companies....they are still charging way more than other hospitals, so I think its time to tune them up again with another complaint. BTY, the chemo nurses and my Oncologist were behind be on taking the hospital to the cleaners so to speak for making a profit at breast cancer patients expense.

I also had the experience of receiving long term disability from the company I worked for for 11 years...I paid while I was working for this benefit....once I qualified, they insisted I apply for SSD to help defray their costs. I did and was granted Social Security Disability without any questions....after that, the disability insurance decided I was no longer "disabled" and stopped payment of long term disability payments. I still recieve disability through Social Security, but lost about 2000.00 a month in income from this. After that, my employer terminated me because I wasn't released to go back to work.....nothing like adding to the stress for cancer patients. By the way, my employer was the largest construction company in the world with over 10000 permanent employees....I guess I was truly a number in the pool!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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