[mekasan]

Hi Lani,
That's interesting that you mention Gina. I actually met her in DC last year when I went to the NBCC patient advocacy conference. She was in the area and Michele (from here) called up.

We did discuss some of her issue and it upset me to hear about what she went through. I know that many of us get pushed around when we are the most vulnerable and that is why I want to do this.

From the first month of my diagnosis through the present, I spent and spend hours on the phone with all levels of my insurance company's decision-makers trying to remedy thier "confusion" with the policy coverage. It is tiring. I am young and considered myself "energetic" even when in treatment (no one else will agree). I can imagine that many people may not be as energetic (for a number of reason i.e. kids to tend to, age, longer treatment, more side effect, etc) and that would make it hard to just sit on the phone for hours fixing this side of cancer.

It is should not be the job of the person in treatment to resolve adminstrative issues from their bed. I want that job. Let those in treatment rest and get better, not waste precious moments of energy making calls!

Thanks for the help